Families with Congenital Heart Defects

I recently finished compiling my book, “Matters of the Heart.” This is the first volume of stories written by families with congenital heart defects. 

There were many times while going over them, making grammatical changes, etc. that I cried with these families. Families with congenital heart defects go through a huge ordeal with their children. It is not only an emotional journey but also a financial one. The hospital and surgery bills are immense, and often families with congenital heart defects have to fight with their insurance companies in order to have everything covered. 

In my book, there are various examples of close calls with their children. They went home happy with their newborn and then had to find out that there was something wrong with their child’s heart. I talked to many families with congenital heart defects, and they all had the same fears and worries. 

Reading through their life stories made me once again aware of how badly congenital heart defect (CHD) awareness is needed in the U.S. Hardly any of these families with congenital heart defects had a doctor who tested their babies for any kind of defects. Only a few were lucky enough to have an overly careful pediatrician who checked their unborn child.

I am very excited to be able to publish “Matters of the Heart.” It not only brings awareness, but it also gives my families with congenital heart defects the chance to make their voices heard. 

Interested in learning more about families with congenital heart defects? Get Matters of the Heart today.